Friday, August 21, 2009

What If 20% were Lyme Borreliosis?

...AND IF A GREATER PROPORTION'S CAUSED BY LYME? STUDIES INDICATE:
...90 - 100% CFS / ME PATIENTS HAVE LYME
...90% AUTISM ESTIMATED LYME INDUCED
...7 out of 10 ALZHEIMER'S BRAINS FIND LYME

Treating doctors tell us that there are no definitive tests or symptoms that differentiate Lyme disease from the other conditions. For example, a MULTIPLE SCLEROSIS case can look just like a LYME DISEASE case. The difference is there are fairly effective treatments for Lyme disease."


USA Conjectural Lyme Borreliosis Diagram above and modified Lyme Symptom List below from: http://seranogroup.org/index.php
Symptom-------------------Specificity to ----Prevalence In Lyme---Associated
Description-------------Lyme Borreliosis---Borreliosis Possible--Infection


Cardiovascular
Blood Clots/Stroke....................Low.................Low
Fainting.....................................Low.................Low
Frequent, easy bruising.............Low.................Low
Heart flutter, murmurs..............Medium..............Medium
Heartbeat thuds (PVCs)............Medium...............Low
High blood pressure.................Low.................Low
Irregular heartbeat..................Medium...............Low
Pulse races with slight exertion..Low.................Low
Slow pulse................................Low.................Low
Cognitive
Confusion(common mental tasks)..Low.................High
Difficulty articulating thoughts....Low................Medium
Difficulty understand documents..Low................Medium
Disorientation, easily gets lost...Medium..............Medium
Easily loses/misplaces objects..Medium...............High
Forgets how to do routine tasks.Medium..............Medium
Inability to multi-task...............Medium...............High
Long term memory loss................Low.................Low
Short term memory loss...............Low.................High
Unintended word substitutions......Medium..............Medium
Word reversals........................Low................Medium
Dematological
Rash on limb not near tick bite.....Low.................Low
Body rash not near tick bite........Low................Medium...........Babesia
Bullseye rash at site of tick bite..High................Low
Generalized itching....................Low.................High
Recurrent itch @ specific location..Low................Medium
Raised scaly rash......................High................High
Rash with stretch mark appearance..Low.................Low...........Bartonella
Scalp rash not near tick bite........Medium...............Low
Endocrine
Chills...................................Medium............Medium.........Babesia
Fluid retention......................Medium...............Low
Hot Flashes...........................Medium...............Low.............Babesia
Unable retain fluid-dehydration.Medium...............Low
Loss of appetite....................Low................Medium
Loss of appetite....................Low................Medium
Loss of sex drive..................Medium...............Low
Night sweats........................High................Low.............Babesia
Unexplained fevers................Medium...............Low.............Babesia
Unexplained hair loss.............Medium..............Medium
Unexplained increase sex drive..Low.................Low
Unexplained weight gain...........Medium...............Medium
Unexplained weight loss ..........Medium................Low
Unusual fatigue after eating........Low................Medium
Unusual food craving..............Medium...............Medium
Gastrointestinal
Abdominal cramps....................Low.................Low
Backwash/reflux.......................Low.................Low
Bloating..................................Low.................Low
Constipation...........................Low.................High
Diarrhea.................................Low.................High
Upset stomach.......................Low................Medium
Vomiting.................................Low.................Low
General
Extreme fatigue....................Medium................High
Flu-like illness(nonseasonal)..High.................High
Flu-like illness(tick bite <2wks)..High................Medium
Frequent respiratory congestion..Low.................High
Frequent urination..................Low.................Low
Increased allergies................Medium...............High
Irregular menstrual cycle...........Low................Medium
Painful urination.....................Low.................Low
Frequent bacterial infections.....Medium...............Medium
Frequent fungal infections........Medium...............Medium
Frequent viral infections.........Medium...............Medium
Repeated/continual sore throat......Low.................Low
Repeated sinus infection..........Medium................High
Repeated urinary infection........Medium................Low
Shortness of breath...............Medium................Low............Babesia
Swollen glands in armpit..........Medium................Low
Swollen glands in groin...........Medium................Low
Swollen glands in neck............Medium................Low
Unexplained menstrual pain........Medium................Low
Unusual response to alcohol........High................Medium
Unusual response to exercise......Medium................High
Musculoskeletal
Body-wide muscle pain.............Medium................High
Chest pain............................Low..................Low
Creaking, crackling joints........Medium...............Medium
Foot or Heel pain.................Medium................Low............Babesia
Joint pain............................Low..................High
Migrating joint pain...............High................Medium
Muscle cramps.....................Medium...............Medium
Spinal Column Sensitivity......... High.................Low
Stiff neck........................Medium................High
Stiffness in single joint.........Medium...............Medium
Neurologic
Testicular pain...................Medium................Low
Burning mouth.....................Medium...............Medium
Decreased hearing.................Medium................Low
Difficulty chewing................Medium................Low
Difficult urination(start/stop)....Low..................Low
Difficulty swallowing.............Medium................Low
Diminished reflexes................Low..................Low
Facial paralysis...................High................Medium
Facial twitches...................Medium................Low
Feeling of impending blackout.....Medium................Low
General tension-type headache......Low..................High
Gum pain..........................Medium................Low
Headache...........................Low..................High
Hypersensitive reflexes............Low..................Low
Increased motion sickness.........Medium................Low
Jaw pain..........................Medium................Low
Migraine (one-sided) headache......Low..................High..........Babesia
Migrating tooth root pain.........Medium................Low
Numbness or tingling..............Medium................High
Overly sensitive to sound.........Medium................Low
Poor balance, dizziness...........Medium................Low
Pressure in head..................Medium................Low
Random burning/stabbing pains......High................Medium
Restless legs.....................Medium................Low
Ringing/buzzing in ears...........Medium................High
Seizures..........................Medium................Low
Skin pain.........................Medium...............Medium
Slurred/slow speech...............Medium................Low
Stammer/stutter...................Medium................High
Tremors/shaking...................Medium................Low
Unexplained gagging................High................Medium
Weakness/partial paralysis........Medium................High
Ophthamological
Blindness/optic neuritis...........Low..................Low
Blurry vision.....................Medium................Low
Decreased peripheral vision.......Medium................Low
Double vision.....................Medium................Low
Drooping eyelid....................High.................Low
Dry eye............................Low.................Medium
Eye pain...........................Low..................Low
Flashing lights in vision field....High.................Low
Floaters in vision field...........Low.................Medium
Fluttering eye movement............Low..................Low
Red eyes...........................Low.................Medium
Sensitive to light.................Low.................Medium
Teary eye..........................Low..................Low
Temporary blindness...............Medium................Low
Psychological
Absence of dreams..................Low.................Medium
Aggression........................Medium...............Medium
Difficulty falling asleep.........Medium................High
Difficulty staying asleep.........Medium................High
Hears things not present...........High.................Low
Irritable.............................Low..................Low
Mood swings........................Low.................Medium
Obsessive/compulsive behavior......Low.................Medium
Overly sensitive, cries easily....Medium...............Medium
Panic/anxiety attacks.............Medium...............Medium
Paranoia.............................Medium................Low
Senses someone near(not present)...High.................Low
Sleeps unusually long.............Medium................Low
Smells things not present..........High.................Low
Suicidal thoughts.................Medium................Low
Unusual depression................Medium...............Medium
Vivid dreams or nightmares.........Low..................Low

Monday, August 3, 2009

Lyme Brain Fog - 9mth Neurologist Wait

POOR CONCENTRATION, MEMORY LOSS, VERTIGO, LANGUAGE LOSS, DISASSOCIATION,TENDER SCALP, VISION DISTURBANCES, NERVE ABNORMALITIES, DIFFICULTY MULTITASKING, COMPREHENSION ISSUES, MIGRAINES, EYE PAIN, LIGHT & SOUND SENSITIVITIES...

AFTER raising my neurological concerns with two specialists, I finally persisted with my GP for a referral to have an initial appointment with a visiting Neurologist, who's first appointment available is in April 2010! Obviously I will try and get a referral for a City based appointment, that may shave a little wait off our first introduction. It seams clear that if I have enough brain function to know something is wrong, then obviously something isn't wrong enough. Sorry but my experiences with Australia's health care has been a whole lot of bad mixed with a small portion of good.

A Lyme Patient's Brain:BEFORE ..............................2YRS AFTER TREATMENT

LYME HEARING 30 JULY 2009:

8:30 a.m. ET --CALDA CEO Lorraine Johnson showed her own SPECT scans, showing major changes in her brain before and after long term antibiotic therapy. She presented results of CALDA's survey of 3,000 Lyme patients, indicating that more than half of respondants remained ill under the IDSA guidelines. Of those, more than 60% improved with additional treatment. She compared Lyme treatment (per IDSA--no options in treatment) with cancer and other diseases which allow for a wide variety of treatment options. Several panel members asked her questions, which allowed her more time to discuss insurance denials."


Quoted from: http://www.lymedisease.org/news/idsa_lyme_hearing/156.html Bottom SPECT pics from: http://www.idsociety.org/WorkArea/showcontent.aspx?id=15058