Monday, August 3, 2009

Lyme Brain Fog - 9mth Neurologist Wait

POOR CONCENTRATION, MEMORY LOSS, VERTIGO, LANGUAGE LOSS, DISASSOCIATION,TENDER SCALP, VISION DISTURBANCES, NERVE ABNORMALITIES, DIFFICULTY MULTITASKING, COMPREHENSION ISSUES, MIGRAINES, EYE PAIN, LIGHT & SOUND SENSITIVITIES...

AFTER raising my neurological concerns with two specialists, I finally persisted with my GP for a referral to have an initial appointment with a visiting Neurologist, who's first appointment available is in April 2010! Obviously I will try and get a referral for a City based appointment, that may shave a little wait off our first introduction. It seams clear that if I have enough brain function to know something is wrong, then obviously something isn't wrong enough. Sorry but my experiences with Australia's health care has been a whole lot of bad mixed with a small portion of good.

A Lyme Patient's Brain:BEFORE ..............................2YRS AFTER TREATMENT

LYME HEARING 30 JULY 2009:

8:30 a.m. ET --CALDA CEO Lorraine Johnson showed her own SPECT scans, showing major changes in her brain before and after long term antibiotic therapy. She presented results of CALDA's survey of 3,000 Lyme patients, indicating that more than half of respondants remained ill under the IDSA guidelines. Of those, more than 60% improved with additional treatment. She compared Lyme treatment (per IDSA--no options in treatment) with cancer and other diseases which allow for a wide variety of treatment options. Several panel members asked her questions, which allowed her more time to discuss insurance denials."


Quoted from: http://www.lymedisease.org/news/idsa_lyme_hearing/156.html Bottom SPECT pics from: http://www.idsociety.org/WorkArea/showcontent.aspx?id=15058

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